- Organization Name:Acoustic Neuroma Association
- Address:600 Peachtree Parkway
Cumming, GA 30041
The mission of ANA is to inform, educate and provide national and local support networks for those affected by acoustic neuromas, and to be an essential resource for health care professionals who treat acoustic neuroma patients.
The Acoustic Neuroma Association (ANA) provides information and support to patients who have been diagnosed with or experienced an acoustic neuroma or other benign problem affecting the cranial nerves.
An acoustic neuroma is a benign (non-cancerous) growth that arises on the eighth cranial nerve leading from the brain to the inner ear. The most common first symptom is hearing loss in the tumor ear and others are balance issues, tinnitus, headaches and facial pain, numbness or paralysis. The treatment options are observation, surgical removal or radiation. The cause is generally unknown, although it may be genetic in some cases.
Patient founded in 1981, ANA is an incorporated, non-profit organization, recognized as such by the IRS, and is supported by contributions from its members. The association also furnishes information on patient rehabilitation to physicians and health care personnel, promotes research on acoustic neuroma, and educates the public regarding symptoms suggestive of acoustic neuroma, thus promoting early diagnosis and successful treatment.
Acoustic Neuroma Association (ANA) was founded in Carlisle, PA in 1981 by Virginia Fickel Ehr, who had microsurgical removal of her large acoustic neuroma in 1977. Before and after surgery, she experienced significant neurological deficits. She sought information about acoustic tumors; information which could be understood by the layperson. Since her search was unsuccessful, she made a commitment to making available appropriate information to those who followed her in their acoustic neuroma experience.
With assistance from a number of leading surgeons and patient volunteers, ANA was incorporated in 1981. During her decade and a half of ANA leadership, Ginny contacted thousands of acoustic tumor patients and worked for the association's growth in services and numbers. In addition she wrote patient-perspective articles for medical journals and spoke to both patient and medical groups in the U.S. and Europe. She retired as President of the Board of Directors of the association in 1992 and now serves at President Emeritus. Ginny continues to be a resource to ANA and participates in ANA symposiums.
Since the founding of ANA in 1981, thousands of patients, family members, friends and health care professionals have received comprehensive and non-technical information about acoustic neuroma. Pre- and post-treatment information is provided in our quarterly newsletters, patient information booklets, our website, symposiums and local support groups.
- Year established:1981
- Organization type:Grantseeker
- Country of registration:United States
- Tax Determination Letter:Received Determination Letter
- IRS Section:501(c)(3)
- IRS Subsection:None
Types of funding being sought (i.e. funding type)
- None specified
Program areas of focus and activity (i.e. funding cause)
- None specified
Geographic areas of focus and activity (i.e. geographic area)
- None specified