Arthrogryposis Multplex Congenita Support, Inc. (Salyersville, KY)


  • Name:Theresa Lucas
  • Title:President

Organization Address

  • Organization Name:Arthrogryposis Multplex Congenita Support, Inc.
  • Address:PO BOX 1883
    Salyersville, KY 41465
    United States

Organization Phone

  • Main phone:7656831053

Organization Web

User Email


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  • Mission:
  • The Purpose of AMCSI is to help promote a greater overall understanding and awareness, not only to our members, but to the general public and those in the field of medicine/ research, of what Arthrogryposis Multiplex Congenita (AMC) is, the effects it has on those affected with it and the treatment options available
    To Provide supportive, encouraging, and educational environment for our members.

  • History:
  • Ani Samargian created, an online Arthrogryposis Multiplex Congenita (AMC) support group in July of 2005. Ani, the mother of Abigail Marie, a child born with Amyoplasia, a form of Arthrogryposis, created the group because at the time, there was very little information available to families due to the rare occurrence of AMC. The online group was a direct result of the high volume of emails she received from families regarding a website she had created to document her daughter’s progress. During the ensuing years, the interest and activity of the online support group grew and blossomed. From the original 30 members, membership has grown to over 400 families. Once a strictly online community, AMC support brought families together for The First Annual AMC Convention, a real world gathering, in Chicago, Illinois, during the summer of 2006. A second convention held in Arlington Texas, July 2007 brought even more families together. The largest portion of Ani’s dream was to form an IRS recognized 501(C)(3) corporation that would continue her support of families and medical professionals well into the future. With the help of an army of volunteers, and the generous contributions of Roland Pieper, an attorney whose granddaughter has Arthrogryposis, a Board of Directors was created, and work began on the daunting process of becoming a non-profit corporation. Submission of the application for the approval of the IRS occurred on October 6, 2006. On September 7, 2007, Arthrogryposis Multiplex Congenita Support, Inc. was granted Non-profit status as a 501(C)(3)corporation, and that dream became a reality.

  • Year established:2007
  • Endowment:Unknown


  • Executive / Trustee board size:8
  • Advisory board size:2
  • Staff size:10


  • Organization type:Grantseeker
  • Country of registration:United States
  • Tax Determination Letter:Received Determination Letter
  • IRS Section:501(c)(3)
  • IRS Subsection:Operating
  • Tax ID:20-8287870

Other Organization Web

IRS Business Master File Information

  • EIN:208287870
  • Sort (Secondary) Name:AMC SUPPORT
  • Care Of Name:% JENNIFER KEETON
  • Organization Address:PO BOX 6291
  • Organization City:SPARTANBURG
  • Organization State:SC
  • Organization Zip:29304-6291
  • Group Exemption Number:0000
  • Subsection Code:03
  • Classification Code(s):2
  • Subsection/Classification Desc.:Educational Organization
  • Affiliation Code:3
  • Ruling Date:August, 2007
  • Deductibility Code:1
  • Foundation Code:16
  • Foundation Code Desc.:Organization that normally receives no more than one third of its support from gross investment income and unrelated business income and at the same time more than one third of its support from contributions, fees, and gross receipts related to exempt purposes. 509(a)(2)
  • Activity Code(s):
  • Activity Code Desc.(s):
  • Organization Code:1 (Corporation)
  • Exempt Org. Status Code:01 (Unconditional Exemption)
  • Tax Period:December, 2016
  • Filing Requirement Category:01 (990 (all other) or 990EZ return)
  • Accounting Period:December
  • NTEE Code:E05
  • Asset Amount:$323,045
  • Asset Code:4 ($100,000 - $499,999)
  • Income Amount:$115,248
  • Income Code:4 ($100,000 - $499,999)
  • 990 Revenue Amount:$106,162
  • Last Updated:2/19/2018 7:52:05 pm

This information is directly from the IRS Exempt Organization Business Master File at Exempt Organizations Business Master File Extract. This information is not under the control of the Common Grant Application and is collected and compiled and can only be changed by the IRS.