American Association of Caregiving Youth, Inc. (Boca Raton, FL)


  • Name:Dr. Connie Siskowski
  • Title:President

Organization Address

  • Organization Name:American Association of Caregiving Youth, Inc.
  • Address:1515 North Federal Hwy
    Suite 214
    Boca Raton, FL 33432
    United States

Organization Phone

  • Main phone:561-391-7401
  • Main fax:561-416-7213

Organization Web

User Phone

  • Mobile phone:561-715-6531

User Email


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  • Mission:
  • It is no secret that good health, health care and academic success are areas of challenge for our nation’s children and their families. It is also no longer a secret that the overwhelming majority of long-term care is provided at home by adult family caregivers.

    However, it is still pretty much a secret that there are more than 1.3 million children ages 8-18 years who are silent providers of long term care (Young Caregivers in the US, 2005). In this role they sacrifice their health, development and academic success.

    Thus, the American Association of Caregiving Youth (AACY) was established. AACY is the national resource for the support of youth who are caring for ill, injured, elderly or disabled family members.

    The mission of the AACY is fourfold. It is to:
    - increase awareness about caregiving youth including through national partnerships;
    - provide direct and indirect support services for caregiving youth and their families;
    - develop affiliations and replicate its Caregiving Youth Project services within Florida and the US; and
    - establish the Institute on Caregiving Youth as a vehicle for research, publications and the education of both the public and professionals.

    AACY believes that no child should be unhealthy or have to drop out of school because of family caregiving responsibilities. It values the contribution of caregiving youth to their family, to the health care system and to society. AACY seeks to advocate on behalf of caregiving youth in their valuable family role and help them experience a bit of childhood while achieving success in school and life.

    AACY promotes system change by integrating healthcare (body), education (mind) and the community (spirit) to create a solid foundation of support services. The success of these youth who provide home health care requires that systems work synergistically on behalf of these deserving children who are in and responding to family health situations which occur through no fault of their own.

  • History:
  • The American Association of Caregiving Youth, Inc. (AACY) began in 1998 as Boca Raton Interfaith in Action. With funding from the Robert Wood Johnson Foundation, it provided volunteer support services to homebound persons and caregiving families in our local Florida community. The organization served people of all ages and conditions.

    In 2002, research in Palm Beach County schools documented a high prevalence of child caregivers among middle and high school students. More than one third of the more than 12,000 participants indicated school difficulties as a result of family health situations. The organization’s founder, herself a child caregiver who in later life suffered consequences as a result of this role, originated this doctoral research and felt compelled to take some action as a result of the findings. Members of the community began to explore potential system changes to identify, recognize and support caregiving children to reduce their burden as well as reduce this barrier to their ability to learn.

    Meanwhile, to be more descriptive of the services offered, the nonprofit corporation's name was changed to Volunteers for the Homebound and Family Caregivers, Inc. (VHFC) in 2005.

    Also in 2005, the National Alliance on Caregiving and United Hospital Fund released Young Caregivers in the US which revealed there are at least 1.3 to 1.4 million children ages 8-18 years who are caring for sick or disabled relatives. About one-third assist a grandparent. Then in March 2006, the Silent Epidemic study, funded by the Bill and Melinda Gates Foundation, retrospectively looked at young adults who had dropped out of school. Among those who stopped school for personal reasons, 22% left to care for family members.

    Concern for children in caregiving roles prompted action. Under the auspices of VHFC, the first US Caregiving Youth Project (CYP) began in 2006. In partnership with The School District of Palm Beach County, it started at one middle school which was selected among the top ten in prevalence of caregiving youth from the 2002 research. Students completed an eligibility process to determine their Level of Responsibility (LOR). The LOR is based on the types of caregiving activities they perform and the time they spend each week in caregiving.

    With parental permission, students within the top three LORs can participate in CYP services in school, out of school and at home. Services provide support to caregivers personally and academically as well as strengthen their families with a myriad of needs-driven wraparound services and referrals to community partners. Students who continue in their caregiving role can elect to remain in the CYP – and they do – throughout the rest of their middle and high school years.

    In order for the organization to focus solely on youth caregiving and address unmet needs for an underserved population, volunteer adult services were transferred to a local non-profit organization. Effective January 1, 2010 the nonprofit corporate name officially changed to the American Association of Caregiving Youth. Its goal is to prevent the well known ramifications of family caregiving by integrating healthcare, education and the community so that children who are caregivers grow to be educated, healthy and productive adults.

    Today, the American Association of Caregiving Youth (AACY) is the national resource for the support of children who care for family members who are ill, injured, elderly or disabled. It continues direct services to more than 400 child caregivers in Palm Beach County. The AACY mission is to raise awareness about caregiving youth, foster the replication of the Caregiving Youth Project (CYP) through an affiliate network in FL and the US, to provide direct and indirect services to caregiving youth and their families, and ultimately to establish the Institute of Caregiving Youth.

  • Year established:1998
  • Endowment:Unknown


  • Executive / Trustee board size:5
  • Advisory board size:11
  • Staff size:9

Board and Executive Names

  • Board Members / Trustees:
  • Mark Hansen
    Coldwell Banker

    Paula Alderson
    Hospice by the Sea
    Vice Chair

    Connie Siskowski, RN, PhD
    Founder & President

    Tom Tift, PhD
    First United Methodist Church

    Scott Walters, CPA
    Daszkal Bolton

    Charles L. Brown, PhD
    Florida Atlantic University

    Deborah Brown
    Former Caregiving Youth

    Gail Eagle
    JES Publishing

    Shelby Linton*
    HSBC Bank

    Ronnette Smith

    Ronda C. Talley, PhD., MPH
    Suzanne Vitale Clinical
    Education Complex

    *On LOA

  • Executive Director / President:
  • Connie Siskowski, RN, PhD – Founder & President

Staff Names

  • Key Staff:
  • Cynthia Cummings – Director of Finance and Operations
    Lynne Durbin, LMHC – Director of Middle School Services
    Karen Harwood, MSW – Director of Family Care
    Cristy Kovach Hom, LCSW – Director of Continuing Care


  • Organization type:Grantseeker
  • Country of registration:United States
  • Tax Determination Letter:Received Determination Letter
  • IRS Section:501(c)(3)
  • IRS Subsection:None
  • Tax ID:65-0866677

Other Organization Web

IRS Business Master File Information

  • EIN:650866677
  • Sort (Secondary) Name:
  • Organization Address:1515 N FEDERAL HWY STE 218
  • Organization City:BOCA RATON
  • Organization State:FL
  • Organization Zip:33432-1952
  • Group Exemption Number:0000
  • Subsection Code:03
  • Classification Code(s):1
  • Subsection/Classification Desc.:Charitable Organization
  • Affiliation Code:3
  • Ruling Date:April, 1999
  • Deductibility Code:1
  • Foundation Code:15
  • Foundation Code Desc.:Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi)
  • Activity Code(s):
  • Activity Code Desc.(s):
  • Organization Code:1 (Corporation)
  • Exempt Org. Status Code:01 (Unconditional Exemption)
  • Tax Period:June, 2016
  • Filing Requirement Category:01 (990 (all other) or 990EZ return)
  • Accounting Period:June
  • NTEE Code:P20
  • Asset Amount:$273,224
  • Asset Code:4 ($100,000 - $499,999)
  • Income Amount:$830,034
  • Income Code:5 ($500,000 - $999,999)
  • 990 Revenue Amount:$830,034
  • Last Updated:2/22/2018 2:56:33 am

This information is directly from the IRS Exempt Organization Business Master File at Exempt Organizations Business Master File Extract. This information is not under the control of the Common Grant Application and is collected and compiled and can only be changed by the IRS.