Alzheimer's Respite & Resource DBA Memory Matters (Hilton Head Island, SC)

Name

  • Name:Edwina Hoyle
  • Title:Executive Director

Organization Address

  • Organization Name:Alzheimer's Respite & Resource DBA Memory Matters
  • Address:PO Box 22330
    117 William Hilton Parkway
    Hilton Head Island, SC 29925
    United States

Organization Phone

  • Main phone:843.842.6688
  • Main fax:843.681.5522

Organization Web

User Email

Location

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General

  • Mission:
  • Memory Matters is a center of excellence in Alzheimer's and dementia-specific adult social daycare, and resources for families and community. Our programs, delivered with compassion and dignity, are four- fold: (1) to provide a high quality, dementia-specific daycare program; (2) to offer Caregiver respite, support, and education; (3) to counter early memory loss through the Brain Boosters program and the newly developed Connections program; and (4) to engage local communities via outreach with Alzheimer’s and related dementia education.

  • Overview:
  • Memory Matters is the only local, non-profit agency that serves families in southern Beaufort County and Jasper County in southeastern South Carolina who struggle with the devastating effects of Alzheimer’s disease and other forms of dementia. We offer a dementia-specific Daycare Program 5 days a week with activities designed for mental and physical stimulation in a safe, caring and compassionate environment. Active participation through socialization, art therapy, exercise and dancing, music therapy, games that stimulate mentally, pet therapy, drama, friendship and companionship, snacks and a hot lunch is core to keeping the brain engaged. With loved ones enrolled in the Daycare Program caregivers are simultaneously provided with a much-needed respite from the grueling demands of the 24 hour-7 day a week care of their loved ones.

    In addition to daycare and respite, we offer weekly support groups for caregivers; formal networking and educational programming for caregivers; a website that includes caregiver resources; a lending library with books, videos and community resources; a crisis hotline; individual counseling and crisis management; case management to ensure a continuum of care; and help for caregivers through referrals to appropriate providers.

    Recent metrics illustrate continuous growth in our programs; and an expanding need in our service area. In our dementia-specific daycare, Memory Matters has experienced an enrollment increase of 77% since we moved into our own facility in 2009. The Daycare Program in 2013 saw a 21% increase in the number of sessions (N = 3,463) over the previous five-year average. For the sessions of the early memory loss program, Brain Boosters, we had 79 participants. In addition, Memory Matters held 105 caregiver support group sessions with total attendance of 832 and fielded 1,160 hotline calls from families in crisis.

  • History:
  • Memory Matters was founded as a grassroots non-profit organization, Alzheimer’s Respite & Resource in 1997 by church and civic leaders who recognized and addressed an unmet need in the community to provide respite to families caring for those with dementia. Delivering a Brookdate model program, our first 12 years were spent weekly in four different church halls, plus a separate office location. This speaks to the recognition of the program’s worth to the community.

    In January, 2007, Alzheimer’s Resource & Respite, the forerunner of Memory Matters, conducted a caregiver survey to seek guidance from those who used our program to determine needed services and programming. A common response was that “...an increase in the daily hours would be most helpful. The program as it is [3.75 hours] keeps me tied to a strict schedule mentally and physically.” Sixty-five percent (65%) indicted that optimum hours for service would be between 9 a.m. and 4 p.m. In addition, 36% of the caregivers responded that if a full day program in a convenient location were offered, they would use the group respite 5 days a week. Fifty-two (52%) responded that they would use the respite program 2-3 times a week.

    In 2009 we moved into a permanent facility initiating a full day program, seven hours daily. Our program has grown 25-30% each year because we are now easy to find, changed to a much less intimidating and scary name to a user friendly brand (Memory Matters), and have been able to truly provide comprehensive programming for both the participants AND their families.

    Addressing the growing number of families with members dealing with Early Memory Loss (EML) yet too highly functioning for the Daycare Program, we initiated in 2007 “Brain Boosters”, a pro-active program for those with early memory loss and mild cognitive impairment (MCI). Originally designed as a 6-week workshop for those concerned with changes in their memories, this educational initiative expanded to 8-week segments offered consecutively throughout the year. In January 2014, Connections was added to the early memory loss programming to specifically address the issues faced by persons with MCI.

    Our community outreach activities have touched almost 2,000 individuals this past year. Informational, awareness, and education presentations have been delivered to religious groups, neighborhood associations, golfing associations, civic clubs, and at community events. Millennials at local colleges and high schools were introduced to intergenerational issues and opportunities.

    Memory Matters is a respected and reputable organization in the community. In 2004 we received Angel Charity status from the South Carolina Secretary of State. In 2009 we were awarded the Organization of the Year by the Hilton Head/Bluffton Chamber of Commerce. In 2012 Memory Matters was awarded the Erin Hardwick Award for Excellence in Non Profit Management by the South Carolina Association of Non Profit Organizations.

    In 2011 and in 2013, as part of its community outreach, Memory Matters hosted “Moment by Moment”, a caregiver conference (170 attendees) featuring Teepa Snow. Our professional contributions include our program director being invited to present at the National Brookdale Conference on dementia care in Colorado on art therapy based on the exceptional programs we offer. And our executive director has presented a workshop on Board Roles and Responsibilities each of the last two years at the annual South Carolina Association of NonProfit Organizations Conference.

    In 2013, Memory Matters was the subject of a documentary airing on national PBS called "Visionaries," a program showcasing exemplary non-profit models which can be replicated in communities nationwide. In March 2014, Memory Matters was acknowledged in an awards gala at the Museum of Modern Art in New York City by Met Life’s Cure for Alzheimer’s Fund. Memory Matters was the subject of a second documentary film which will be made public in the coming months. The film was created by Oscar-winning filmmaker Roger Ross Williams and showcases our work with a Gullah family who benefits from our scholarship/fee waiver program. Recently, Memory Matters was honored by the international-member PGA Tour as its Charity of the Year from 3,000 charities in the country.

  • Year established:1997
  • Endowment:Unknown

Staff

  • Executive / Trustee board size:18
  • Advisory board size:0
  • Staff size:6

Registration

  • Organization type:Grantseeker
  • Country of registration:United States
  • Tax Determination Letter:Received Determination Letter
  • IRS Section:501(c)(3)
  • Tax ID:58-2291775

Other Organization Web

IRS Business Master File Information

  • EIN:582291775
  • Organization Name:ALZHEIMER RESPITE & RESOURCE
  • Sort (Secondary) Name:MEMORY MATTERS
  • Care Of Name:
  • Organization Address:PO BOX 22330
  • Organization City:HILTON HEAD
  • Organization State:SC
  • Organization Zip:29925-2330
  • Group Exemption Number:0000
  • Subsection Code:03
  • Classification Code(s):1
  • Subsection/Classification Desc.:Charitable Organization
  • Affiliation Code:3
  • Ruling Date:January, 1998
  • Deductibility Code:1
  • Foundation Code:15
  • Foundation Code Desc.:Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi)
  • Activity Code(s):994, 160, 574
  • Activity Code Desc.(s):Described in section 170(b)1)(a)(vi) of the Code, Aid to the handicapped (see also 031), Day care center
  • Organization Code:1 (Corporation)
  • Exempt Org. Status Code:01 (Unconditional Exemption)
  • Tax Period:December, 2016
  • Filing Requirement Category:01 (990 (all other) or 990EZ return)
  • Accounting Period:December
  • NTEE Code:P81
  • Asset Amount:$2,674,865
  • Asset Code:6 ($1,000,000 - $4,999,999)
  • Income Amount:$1,054,185
  • Income Code:6 ($1,000,000 - $4,999,999)
  • 990 Revenue Amount:$1,011,068
  • Last Updated:2/23/2018 6:30:58 pm

This information is directly from the IRS Exempt Organization Business Master File at Exempt Organizations Business Master File Extract. This information is not under the control of the Common Grant Application and is collected and compiled and can only be changed by the IRS.